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Recently, Cai Lei, former vice president of JD.com and ALS patient, said that life has counted down.
But even so, on January 27, Cai Lei and his wife announced a donation of 100 million yuan to support ALS research.
The 100 million funds mainly come from 5 aspects, namely the live broadcast income of "Icebreaker Station", the charitable trust for overcoming ALS, love funds, the remuneration of "Believe" and personal assets.
With the injection of this fund, the scientific research funds for ALS will be effectively guaranteed for a certain period of time.
Although in the eyes of many people, for neurodegenerative diseases like ALS, the funds donated by Cai Lei are equivalent to a drop in the bucket, Cai Lei and his wife are still doing their best to make blood for scientific research.
So, is ALS only a financial dilemma?
In fact, ALS has been in a state of embattlement since its discovery.
Stephen Hawking, known as the "King of the Universe", was in his prime at the time, and he was in high spirits at Oxford University to imagine his own great future.
However, ALS crept in.
At first, Hawking simply felt like his reflexes were getting more and more clumsy, and he often fell without warning.
At one point, Hawking fell straight down the stairs, causing a brief period of amnesia.
In just two years, Hawking's situation has become more serious, and even Hawking's speech has become slurred.
For this reason, the parents took Hawking to seek help from a specialist.
Unexpectedly, the diagnosis given by the doctor was a bolt from the blue.
Hawking developed amyotrophic lateral sclerosis, also known as ALS. And doctors also predicted that Hawking's life span would be only two years at most.
However, the illness did not leave Hawking to fate, he still walked on the road to study, overcame various difficulties, not only graduated from Cambridge University, but also gained love.
Stephen Hawking miraculously broke the curse of only two years to live.
But his physical condition deteriorated, and ALS made a huge change in his appearance and body.
As a direct result, Hawking needs to be taken care of 24 hours a day, and needs to be accompanied by a wheelchair at all times, and if you want to express something, you need to go through a special way to show it.
But this situation did not prevent Hawking from studying physics, and even under the deadly threat of ALS, Hawking made people's lives out of print.
In fact, Hawking has been trying**, but with little success.
And this is precisely the fatal part of ALS, since the discovery of the disease, there has been no breakthrough in the world, and not a single patient has been cured.
This means that once ALS is diagnosed, the patient has to sit back and wait for death.
Although, in the past 200 years, many experts around the world have tried in this regard, but the gains are limited to the analysis of the pathological basis and the preliminary idea of the first method.
Therefore, it can be said that it is difficult to break the ice on ALS.
In addition, ALS is a rare disease, and according to the proportion, there will be 4 to 8 cases in 100,000 people.
However, its fatal point is that the mortality rate of disability is as high as 95% within 5 years of illness.
This dooms the research of ALS to lack market support, so profit-oriented capital tends to take a detour and will not invest too much money in this area.
What's more, ALS itself is difficult to overcome, and even if capital is willing to gamble, it is difficult to obtain long-term financial support.
In fact, in terms of capital, repeated defeats and battles are never the norm, and they will only stop in moderation, which is destined to be a shallow stop in ALS research.
After all, in an economic society, profitability is the long-term solution.
In 2019, Cai Lei, former vice president of JD.com, was diagnosed with ALS.
This news completely disrupted Cai Lei's career plan, and he couldn't think about a very realistic problem.
Do you resign yourself to your fate and let ALS slowly eat away at life, or do you rise to the challenge and try to overcome ALS?
After some thought, Cai Lei chose the latter.
Cai Lei wants to be the first person to eat crabs in China, even if the future backfires and it is difficult to get what he wants, at least he will contribute to promoting ALS research, and he will not die in vain.
So, Cai Lei took overcoming ALS as his mission, and began to deal with ALS.
When this decision was made, Cai Lei's physical condition was not ideal, but Cai Lei did not hesitate.
Cai Lei ignored his wife's opposition, often took out the work status of Saburo when he was healthy, and devoted himself to the work of overcoming ALS.
However, it didn't go well at first, Cai Lei's financing was almost unwanted, and many people only made a part of the investment out of sympathy or out of friendship.
But Cai Lei did not give up because of this, he wanted people all over the world to know that the people suffering from ALS are a group, not an exception, and it is not based on the premise of large population data, which sounds like a negligible proportion of patients.
Since ALS has a dilemma, let's overcome it one by one.
Cai Lei said that he would do it, and he established Escon Medical and began to test ice in ALS research.
Cai Lei understands that in order to make ALS research a sustainable research project, it is necessary to have a systematic research carrier and platform.
As a result, Cai Lei started a personal battle, and he built a world-class platform for ALS research in China.
This can not only attract researchers in professional fields to participate, but also allow more people to understand ALS and pay attention to the ALS disease population.
In order to raise funds, Cai Lei actively promoted the Ice Bucket Challenge to attract more capital to help ALS research.
Perhaps, if a little adds up, you can wear it with droplets.
Of course, this is just one way, Cai Lei has also taken investment**, public welfare** and other measures to try to establish a steady stream of hematopoietic function for ALS research funds.
During this period, Cai Lei took out his personal assets more than once to make up for the shortcomings of ALS scientific research.
No, recently, Cai Lei has invested another 100 million yuan to continue to use it for ALS research.
At the same time, faced with the dilemma that ALS scientific research requires clinical trials, Cai Lei chose to test the drug himself.
The *** of the drug made Cai Lei miserable, and no one could predict what kind of *** the drug test would bring to Cai Lei's already not optimistic body
But Cai Lei has no time to take care of these, if no one is willing to be a "guinea pig", scientific research can often only stay in the laboratory.
Then, it will be difficult for such scientific research to achieve breakthrough development, after all, the development of anything is through continuous trial and error, so that it can get closer and closer to the truth.
However, even if Cai Lei tried his best, there were still onlookers pointing fingers.
Some people questioned that his efforts were grandstanding, some suspected that his attempts had ulterior motives, and some even pointed the finger at Cai Lei's wife, accusing her of bringing goods with a smile, without the sad appearance of a patient's family!
Perhaps, to a certain extent, such criticism is the real dilemma of frostbite. Other objective dilemmas, such as blank methods, huge funding needs, and faltering scientific research, are not problems, but the unpredictability of people's hearts will never be solved.
Because, people's hearts can easily erase everything about a person! Although it is not obvious, it is enough to become a grain of sand on the road of scientific research.
Liu Xiang of the Han Dynasty once said: "The crowd is full of gold, and the bones are destroyed." It means that the blame of all mouths is enough to destroy everything that is as solid as a rock, and it is often used as a metaphor for the fear of gossip.
It can be seen how amazing the lethality of gossip is, especially in the ** era, many people can let all kinds of strange rumors fly all over the sky without leaving home.
Ironically, such a person seems to be harmless to humans and animals, and the words he says seem to be inadvertently emotional, but every sentence is tantamount to punishing the heart.
Even in eggs, they can probably pick out a lot of unexpected bones.
But the initiator is careless about this, thinking that it is just a sentence, and it is not a big deal. As everyone knows, good words are warm in three winters, and bad words are hurtful and cold in June. You tell me?
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Author: Momo Tea.
Editor: Ichiyigi.