For most people, darkness is a frightening existence. It not only represents the state of darkness and lightlessness, but is often used to symbolize uncertainty, the unknown and terror. When you walk in the dark, you will be restless and helpless, as if the world is being pulled down, this is the world of retinitis pigmentosa patients, and it is also the world that 13-year-old Xiaohui is currently in.
Little by little, the world disappeared in his eyes.
Xiaohui has had poor eyesight since he was a child, and he has always been naïve to think that everyone should see things the same as him. But this was not the case, and it wasn't until he was in first grade that the teacher noticed his vision problem and recommended that he have his vision checked.
Looking at the eye chart but not being able to point out the correct direction of the letter "e", or even seeing anything on the screen, this frightened Xiaohui, and from then on, he was treated as a "nearsighted" and began to wear glasses.
However, things are not so simple, as he gets older, Xiaohui's vision deteriorates more and more, and his vision is getting narrower and narrower, so he went to a comprehensive tertiary hospital, and the doctor told Xiaohui's mother that this is retinitis pigmentosa (RP for short), with the current technology of Western medicine, there is no surgery or medicine to ** this disease. The doctor also said that Xiaohui's condition is more serious and he may lose his sight.
After hearing the news, Xiaohui's mother felt that the sky was about to fall, what should she do if the child was still blind at such a young age? So far, they have embarked on a long journey to seek medical treatment, and have traveled to major hospitals in Shanghai, Guangzhou and other major hospitals! "Every time I go for a glimmer of hope, but every time I am disappointed."
The combination of traditional Chinese medicine and Western medicine is a two-pronged approach to say goodbye to the fear of blindness.
In August 2023, when Xiaohui followed his mother to the fundus disease department of Changsha Aier Eye Hospital, the visual acuity of the right eye was only 20cm, and the vision of the left eye was even worse, and he only had manual vision in front of the eye, which greatly affected his daily life! Due to the poor effect of Western medicine, the doctor suggested trying the combination of traditional Chinese medicine and Western medicine, so Xiaohui came to the TCM ophthalmology clinic, and Dr. Long Hui conducted a detailed examination for him. Physical examination showed that the tongue was light, the moss was thin and white, the pulse was thin and weak, and since the onset of the disease, the food intake was poor, the sleep was poor, and the urination was frequent. He was diagnosed with high wind and internal cataracts, and the syndrome was characterized by spleen qi deficiency syndrome.
Traditional Chinese medicine (TCM**) is based on the symptoms and signs, combined with the patient's physique, through syndrome differentiation and classification, and adjusted from the patient's whole. On the one hand, acupuncture or acupuncture, auricular pressure beans and other methods are used to improve visual function and delay the course of the disease according to the specific condition of the patient's eyes. On the other hand, the syndrome differentiation is carried out in combination with the overall condition of the patient, and the rational use of drugs is used to improve their physical fitness. For example, Xiaohui is a condition of spleen deficiency on the whole, so he chooses to tonify the spleen and invigorate qi, and use oral Chinese medicine to strengthen the spleen and invigorate qi, nourish blood and eyes, and regulate the whole situation.
In addition, TCM emphasizes recuperation in daily life. Dr. Long Hui said that maintaining a good work and rest habit, avoiding eye fatigue for a long time, and maintaining a good mood all play a positive role in retinitis pigmentosa.
After three months of integrated Chinese and Western medicine**, Xiaohui's vision has improved compared to before, "The light is much brighter when he sees things. At the same time, Xiaohui's complexion improved significantly, and the symptoms of cold intolerance, frequent urination, and poor sleep quality were alleviated, which made them feel very happy.
According to Dr. Long Hui, retinitis pigmentosa (RP) is a group of progressive and blinding inherited fundus diseases characterized by damage to retinal photoreceptor cells and retinal pigment epithelium. The main clinical manifestations are night blindness and progressive visual field defects, so RP has the characteristics of high blindness, which seriously affects the quality of life of patients.
Dr. Long Hui reminded that RP is a common hereditary blinding disease, and there is no best way to do so. The clinical use of integrated traditional Chinese and Western medicine** delays the overall process of RP and improves the quality of life of patients. In addition, proper daily care of RP patients is of great significance, such as avoiding bright light, eating more fresh fruits and vegetables rich in vitamins A, D and E, rational eye use and regular work and rest.
In addition, RP is a hereditary disease, and it is necessary for family members to actively carry out genetic counseling, and early molecular diagnosis combined with family genetic information and specific phenotypic characteristics is of great significance for assessing the risk of RP and actively intervening, which can often effectively delay the course of the disease and improve the quality of life.
Hunan Medical Chat Special Author: Li Qian Follow @Hunan Medical Chat to get more health science information!
Edit yh. **Internet, invasion and deletion).
How much do you know about health?