Today is the International Day of Rare Diseases: Focus on Rare Diseases and Share the Dignity of Life.
February 29 is the International Day for Rare Diseases. This is a special day to draw global attention to rare disease patients and advocate for more care and support from all walks of life. On this special day, let us pay attention to rare disease patients, convey warmth, and work hard for their dignity of life.
Rare diseases, also known as orphan diseases, are diseases that affect a very small proportion of the total population. These diseases are often unknown, have limited approaches, and patients often suffer immensely physically and psychologically. According to statistics, there are about 7,000 rare diseases in the world, affecting about 3500 million people. In China, the number of rare disease patients is also as high as tens of millions.
Although the number of patients with rare diseases is small, their rights and interests also need to be respected and protected. The survival status of patients with rare diseases is often unsatisfactory, and they face multiple difficulties such as difficult diagnosis, high cost, and drug shortage. These problems not only cause distress to the patients themselves, but also put a lot of stress on their families.
The establishment of the International Day of Rare Diseases aims to raise the attention of the society to rare disease patients and promote the research and progress of rare diseases. On this day, people around the world have held activities to call on **, medical institutions, enterprises and all walks of life to pay attention to rare diseases and provide more support and help for rare disease patients.
In China, the care for rare disease patients from all walks of life is also gradually strengthened. In recent years, China has successively introduced a series of policies and measures to increase investment in rare disease research and improve the level of medical security for patients with rare diseases. At the same time, many charities and non-profit organizations are also actively involved in the relief of rare disease patients, providing them with financial and legal support.
However, we still have a long way to go in the face of the plight of patients with rare diseases. The care and protection of patients with rare diseases requires the joint efforts of the whole society. We call on more people to pay attention to rare disease patients, care about their lives, and support rare disease research and**. At the same time, we also hope that patients with rare diseases can face life bravely, strengthen their beliefs, and strive for the dignity of their lives.
On this special day of International Rare Disease Day, let's work together to give a voice to people with rare diseases and create a better future for them. Let us warm the hearts of every rare disease patient with love and respect, so that they can feel the value of life and the warmth of society.