The last day of February is International Rare Disease Day every year. This year's theme is "Focus on the Rare, Light up the Light of Life, Help the Weak, and Practice the People First". On February 29, CPIC's Pacific Health Insurance "Little Blue Flower" public welfare project, together with Shanghai Soong Ching Ling Association and Shanghai Children's Medical Center affiliated to Shanghai Jiao Tong University School of Medicine, jointly launched the "Send You a Little Blue Flower - 2024 International Rare Disease Day Public Welfare Live Event", hoping to build a bridge of communication between patients and doctors, open a window for more people to understand rare diseases, and light up the light of life for children with rare diseases.
In this live interaction, the "Little Blue Flower" public welfare project team of Pacific Health Insurance invited a number of experts from Shanghai Children's Medical Center affiliated to Shanghai Jiao Tong University School of Medicine to popularize the relevant knowledge of rare diseases for everyone, and the on-site Q&A session was warmly welcomed by the parents of the children. According to statistics, there were more than 1,100 people in this live event***
Through the popularization of science from the doctors of Shanghai Children's Medical Center affiliated to Shanghai Jiao Tong University School of Medicine, the public has seen the development of rare diseases: at present, many rare diseases have clear means and methods for diagnosis, more and more drugs are constantly being developed and approved for marketing, and more and more positive methods are also being applied. At the same time, we have also seen the plight of children with rare diseases: many of them miss out on early diagnosis and reasonable ** due to difficult economic conditions or insufficient knowledge of rare diseases. To get out of this predicament, it is inseparable from the attention and help of the whole society for rare diseases, which is also the original intention of "Little Blue Flower" to insist on doing public welfare live broadcasts, so that rare can be seen!
In the future, the "Little Blue Flower" public welfare project will continue to focus on the four dimensions of children's rare disease cognition and research, and continue to help children care for rare diseases through public donations, volunteer services, product development, medical and health resource support, etc.
Illness can be "rare", but care is not. The "Little Blue Flower" public welfare project is a public welfare project for children's rare diseases jointly launched by Pacific Health Insurance and Shanghai Soong Ching Ling** Association, aiming to call on more people to pay attention to children with rare diseases and provide help to children and families with rare diseases.
Up to now, the "Little Blue Flower" public welfare project of Pacific Health Insurance has been carried out for more than a year, bringing tangible help to thousands of children with rare diseases. In the future, "Little Blue Flower" will continue to work with children with rare diseases to move forward and light up the light of life for more children with rare diseases!