On February 29, at the main venue of the 17th International Day of Rare Diseases, the Administrative Committee of the Airport Economic Zone of Capital Airport signed a strategic cooperation agreement with the China Alliance for Rare Diseases, which will seize the opportunity of expanding the opening up of Beijing's service industry and work together to promote the construction of a pilot zone for rare disease drug protection. Wang Qing, deputy director of the Management Committee of the Airport Economic Zone of Capital Airport, attended.
The main venue of the 17th International Day for Rare Diseases series of activities.
The Administrative Committee of the Airport Economic Zone of Capital Airport signed a strategic cooperation agreement with the China Alliance for Rare Diseases.
The event was jointly organized by the China Alliance for Rare Diseases, the Office of the National Rare Disease Diagnosis and Treatment Collaboration Network, the Management Committee of the Airport Economic Zone of the Capital Airport, the Rare Disease Branch of the Chinese Medical Association, the Rare Disease Professional Committee of the Chinese Hospital Association, the Red Cross Society of China, and the Beijing Society for Diagnosis and Treatment of Rare Diseases, together with more than 20 hospitals. The weak are supported, and the people are put first" as the theme. Online + offline academic exchange activities were held at the main venue, and a number of academicians, experts in diagnosis and treatment, security, and policy management were invited to carry out the "Light of Life Scientific Development Forum" and "Multi-party Exchange Meeting on Supporting the Weak".
Rare diseases refer to diseases with a very low incidence, also known as "orphan diseases". According to the World Health Organization, rare diseases are defined as 0 percent of the total population65 to 1 disease. Solving the problem of diagnosis and treatment of rare disease patients and drug use guarantee has received extensive attention from countries around the world. In November 2023, ** approved the "establishment of a pilot zone for rare disease drug protection in Beijing Tianzhu Comprehensive Bonded Zone", which brought good news to domestic rare disease patients from the policy level.
The main bayonet of Tianzhu Comprehensive Bonded Zone.
The Airport Economic Zone of Beijing Airport is adjacent to the Capital International Airport, has the special regulatory policies of the Tianzhu Comprehensive Bonded Zone, and is the window and platform for Beijing's opening up and pilot implementation, gathering more than 500 foreign-funded enterprises. In recent years, relying on the functions of airport ports and comprehensive bonded zones, the airport economic zone of the capital airport has promoted the sustainable and healthy development of the export-oriented medical and health industry under the guidance of medicine, and has gathered more than 40 medical and health enterprises such as Merck, Hanmi, Johnson & Johnson, Sinopharm, and Shanghai Medicine, with a revenue of nearly 40 billion yuan, and the value of imported pharmaceuticals will reach 102 billion yuan in 2023, a year-on-year increase of 26%.
As an authoritative non-profit communication platform in the field of rare diseases in China, the China Alliance for Rare Diseases combines its years of experience in serving rare disease groups, gathers the forces of medical treatment, scientific research, enterprises, patient organizations and other parties to fully promote the construction of the whole ecological environment of "prevention, screening, diagnosis, treatment and treatment of rare diseases", accelerate industrial agglomeration, promote the introduction of rare disease drugs as soon as possible, and let more patients use special drugs.
Keyuan Xinhai (Beijing) medical supplies *** cross-border pharmaceutical e-commerce special warehouse.
The policy of supporting the construction of a pilot zone for rare disease drug protection in Beijing Tianzhu Comprehensive Bonded Zone will further stimulate the policy function advantages of the park and better release the benefits brought by economic development to the people. On February 29, the enterprises in the park, Sinopharm Bonded and Shanghai Pharmaceutical Science Park**, have realized the bonded stock of the first rare disease drug. The relevant person in charge of the Management Committee of the Airport Economic Zone of the Capital Airport said, "The Management Committee will work with relevant departments and professional institutions such as the China Alliance for Rare Diseases to conduct in-depth research, clarify the path, and refine measures, so as to strive for the policy to benefit the majority of patients as soon as possible." ”